Hoffmann, R. A wiki for the life sciences where authorship matters. Nature Genetics (2008)

Editor

Personal info

View

About

Terms

Javascript disabled

Please enable Javascript support in your browser to use this application.

Instructions on how to enable JavaScript on different browsers can be found here: http://www.google.com/support/bin/answer.py?answer=23852.

[edit this page]

Okun, M.S. et al.

Michael S. Okun, Andrew Siderowf, John G. Nutt, Gerald T. O'Conner, Bastiaan R. Bloem, Elaine M. Olmstead, Mark Guttman, Tanya Simuni, Eric Cheng, Elaine V. Cohen, Sotirios Parashos, Laura Marsh, Irene A. Malaty, Nir Giladi, Peter Schmidt, Joyce Oberdorf,

Piloting the NPF data-driven quality improvement initiative.

OBJECTIVE: To pilot a data-driven quality care program in National Parkinson Foundation (NPF) Centers of Excellence. BACKGROUND: Evidence from comparative effectiveness research (CER) can be used to guide decisions regarding health care and to improve quality and efficiency of care. We propose to develop the infrastructure required to conduct CER across an extensive network of NPF Centers of Excellence. METHODS: We present the staged planning for a pilot study which will demonstrate the development and implementation of the infrastructure that will be needed for a large standardized patient-centered, clinical practice database for PD. This database will support CER and drive quality improvement studies. RESULTS: We describe the infrastructure for the ongoing pilot feasibility testing in a subset of six NPF Centers of Excellence, and we discuss the impact that the data (available in 2010) could have in guiding PD management. CONCLUSION: This preliminary experience will facilitate the longitudinal tracking of therapies and of outcomes in PD clinical practice. Further, we are hopeful that the information will provide insight into PD that will extend beyond the clinical trials population (the population included in most available PD databases). This prospective standardized real-world multi-center clinical practice database will aim to identify positive health outcomes associated with treatment approaches, and to identify variations in clinical outcomes that may suggest improvements in best clinical practice patterns.[1]

References

Piloting the NPF data-driven quality improvement initiative. Okun, M.S., Siderowf, A., Nutt, J.G., O'Conner, G.T., Bloem, B.R., Olmstead, E.M., Guttman, M., Simuni, T., Cheng, E., Cohen, E.V., Parashos, S., Marsh, L., Malaty, I.A., Giladi, N., Schmidt, P., Oberdorf, J. Parkinsonism Relat. Disord. (2010) [Pubmed]

Annotations and hyperlinks in this abstract are from individual authors of WikiGenes or automatically generated by the WikiGenes Data Mining Engine. The abstract is from MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine.About WikiGenes Open Access Licence Privacy Policy Terms of Use apsburg

The world's first wiki where authorship really matters (Nature Genetics, 2008). Due credit and reputation for authors. Imagine a global collaborative knowledge base for original thoughts. Search thousands of articles and collaborate with scientists around the globe.